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The Water Cooler
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My little one is having a hard time....
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<blockquote data-quote="EhlerDave" data-source="post: 2757538" data-attributes="member: 2564"><p><strong><span style="color: #000080">Thanks for the suggestion. </span></strong></p><p><strong><span style="color: #000080"></span></strong></p><p><strong><span style="color: #000080">Please do not take this the wrong way at all. The method you are talking about works on what we call "normies" <img src="/images/smilies/smile.png" class="smilie" loading="lazy" alt=":)" title="Smile :)" data-shortname=":)" /> </span></strong></p><p><strong><span style="color: #000080"></span></strong></p><p><strong><span style="color: #000080">The ice part causes our skin severe pain and tightness. It is our messed up skin due to the EDS, (Ehler-Danlos syndrome). Many times with a total dislocation and bruising we get little to no swelling. Most of the time the joints will spontaneously reduce, no need for medical trips unless something is wrong for us. Such as this, she dislocated a knee last b-ball season while cheering. She took her meds and was back on the court for the next game. Now if a "normie" did the same thing it would require a trip to the ER and bracing along with rehab before activities would resume. </span></strong></p><p><strong><span style="color: #000080"></span></strong></p><p><strong><span style="color: #000080">The shot has worn off and other than a bruise she looks fine. She is walking as close to normal as ever. </span></strong></p><p><strong><span style="color: #000080"></span></strong></p><p><strong><span style="color: #000080">If any of you were to meet her without her braces on, no one would guess the amount of dislocations and subluxations she deals with monthly. She is a trooper for sure. She has been dealing with repeated dislocations since she was 16 months old, she just turned 17. That is the point of the song I linked to on youtube. </span></strong></p><p><strong><span style="color: #000080"></span></strong></p><p><strong><span style="color: #000080">My worry is she would walk on that foot rather than admit how much it hurt. We could see how ignoring the pain was wearing her down, she would come home and go to sleep. Sleeping is the best thing for us with this problem. We could see her dropping weight and both eyes looked black. That is the point we must force her to have what ever is hurting looked at, it is not an easy thing. </span></strong></p><p><strong><span style="color: #000080"></span></strong></p><p><strong><span style="color: #000080">She will be wearing a pair of boots for a few days, they zip up the side, she uses the boots when she has no choice but to use her ankle brace, she hates the look of them and they are hot, bit with the boots on the braces cant be seen. <img src="/images/smilies/smile.png" class="smilie" loading="lazy" alt=":)" title="Smile :)" data-shortname=":)" /></span></strong></p></blockquote><p></p>
[QUOTE="EhlerDave, post: 2757538, member: 2564"] [B][COLOR="#000080"]Thanks for the suggestion. Please do not take this the wrong way at all. The method you are talking about works on what we call "normies" :) The ice part causes our skin severe pain and tightness. It is our messed up skin due to the EDS, (Ehler-Danlos syndrome). Many times with a total dislocation and bruising we get little to no swelling. Most of the time the joints will spontaneously reduce, no need for medical trips unless something is wrong for us. Such as this, she dislocated a knee last b-ball season while cheering. She took her meds and was back on the court for the next game. Now if a "normie" did the same thing it would require a trip to the ER and bracing along with rehab before activities would resume. The shot has worn off and other than a bruise she looks fine. She is walking as close to normal as ever. If any of you were to meet her without her braces on, no one would guess the amount of dislocations and subluxations she deals with monthly. She is a trooper for sure. She has been dealing with repeated dislocations since she was 16 months old, she just turned 17. That is the point of the song I linked to on youtube. My worry is she would walk on that foot rather than admit how much it hurt. We could see how ignoring the pain was wearing her down, she would come home and go to sleep. Sleeping is the best thing for us with this problem. We could see her dropping weight and both eyes looked black. That is the point we must force her to have what ever is hurting looked at, it is not an easy thing. She will be wearing a pair of boots for a few days, they zip up the side, she uses the boots when she has no choice but to use her ankle brace, she hates the look of them and they are hot, bit with the boots on the braces cant be seen. :)[/COLOR][/B] [/QUOTE]
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