That is a tough diagnosis. I pray it progresses slowly or not at all. I pray for strength to you both. You know you have the most valuable gift of all - each other.
Woody
Ok quick update and then I'm kicking this recliner back and get some sleep. Not much change. But that's good because for a while there he was changing all the time and it was always in the wrong direction.
Thank you all.
Thank you all.
Praying for speedy recovery for Grumpy and peaceful rest for you. God Bless.
Still praying for you both! 
Please take care of yourself, I know during these times we tend to concentrate on the other and forget about ourselves. Your no help being in a room beside Grumpy. Hoping for the best but please take care.
Please take care of yourself, I know during these times we tend to concentrate on the other and forget about ourselves. Your no help being in a room beside Grumpy. Hoping for the best but please take care.
Hate to hear of this latest issue.Hoping for the best outcome.
I've been to hospitals and you will not get any quality sleep. They are constantly in and out checking stuff, changing IVs, taking blood, giving meds, wondering about living wills, offering patient services, offering religious services, shift change when they write on the board who they are, time for that bath,, gotta get blood pressure, more blood, wake up and take this sleeping pill.
Ok yesterday afternoon they did a bronchoscopy -- I think that's spelled right -- and suctioned a ton of fluid out of his lungs. The doctor let me watch and he was REALLY clogged up. Looked like a bubble bath down in there. Most of it was clear, though, except for one lobe, that we got a tablespoon sized blob or greyish mucous. That was sent off to culture. They changed his antibiotics yesterday afternoon so not quite 24 hours ago.
His breathing is much less labored now and he slept really well last night. I know because I have had a horrible migraine since night before last and I sat here and watched him sleep. Oh and did the PT exercises with his limbs every hour to try and keep the MG from making him any weaker than he already was.
The doc just came by on rounds and Scott's numbers are good enough, and his breathing isn't nearly as labored so they are gonna start weaning him off the ventilator! I'm telling you this man needs to buy a lottery ticket so we can buy our own island and live happily ever after with handsome men servants and pool boys.
If you had told me that he was gonna make that drastic of a turn around in 24 hours I would have told you not to be cruel and get my hopes up. Even the doctor was shaking his head and told Scott he was a really lucky fella.
His breathing is much less labored now and he slept really well last night. I know because I have had a horrible migraine since night before last and I sat here and watched him sleep. Oh and did the PT exercises with his limbs every hour to try and keep the MG from making him any weaker than he already was.
The doc just came by on rounds and Scott's numbers are good enough, and his breathing isn't nearly as labored so they are gonna start weaning him off the ventilator! I'm telling you this man needs to buy a lottery ticket so we can buy our own island and live happily ever after with handsome men servants and pool boys.
If you had told me that he was gonna make that drastic of a turn around in 24 hours I would have told you not to be cruel and get my hopes up. Even the doctor was shaking his head and told Scott he was a really lucky fella.
