Those of you who know Grumpy ...

[dlbleak]

Just asked my wife who is an RN about the condition Scott has. She was familiar with it after having a few patients with it.
It’s an autoimmune disease that with treatment will allow people to live to full life expectancy.
Continued prayers.

 

[foghorn918]

Happy you have some help

 

[2busy]

Nothing to add. Hopefully they can reverse what is wrong. At least to an acceptable level.

 

[thor447]

Continuing to send prayers and well wishes to you and Grumpy. So glad to hear you have family in town to help out. Never hesitate to reach out to OSA. I'm sure there's 20 of us who'll be there at a moment's notice if you need anything.

 

[Lucky]

I’m glad to hear you have some help. Still sending prayers

 

[retrieverman]

Nope not Covid. Myasthenia gravis.

Patti, this disease/condition is no joke. My father in law was diagnosed with it about three years ago and has come really close to dying from “attacks” 4 times, BUT once they get his medication lined out, Scott should be able to get back to a normal life.
I’ll definitely be praying for y’all.

 

[Droff]

It's good to have family (you get along with) show up.

This is so, I don't know the word, other than ...odd.
Our grandson (20 months old) had a huge problem over Labor day weekend when he woke up that Friday, a bit wobbly, fell down a few times and didn't get up. Later in the morning when his Dad set him on the floor, he just fell over and couldn't lift his head. His left eye started drooping as well. Quick run to the ER, then he got admitted.

He was worse by Sat morning, just a big wet noodle, couldn't really move much, Mom had to hold him like he was an infant. By mid afternoon on Sat there were three possibilities...
Miller Fisher
Myasthenia Gravis
Guillaine Barre

The Neuros were leaning toward Guillaine Barre and they started an infusion on Sat evening to help heal his nerves quicker (It's a 5 day infusion). After a few more days, all parties agreed on the diagnosis, GB.
Long story short, he was released on the following Thursday.

Holy hell, I couldn't believe it. I still don't.
He's now walking/running like he didn't have a problem although not as steady - yet.

That was a really scary 3 or 4 days seeing that little boy like that.

I never really thought too much about Myasthenia Gravis until a week or so ago, didn't know much about it, and then you post about Grumpy getting diagnosed. Kinda got a WTH feeling....

Again, hope all goes well.

 

[okcBob]

It's good to have family (you get along with) show up.

This is so, I don't know the word, other than ...odd.
Our grandson (20 months old) had a huge problem over Labor day weekend when he woke up that Friday, a bit wobbly, fell down a few times and didn't get up. Later in the morning when his Dad set him on the floor, he just fell over and couldn't lift his head. His left eye started drooping as well. Quick run to the ER, then he got admitted.

He was worse by Sat morning, just a big wet noodle, couldn't really move much, Mom had to hold him like he was an infant. By mid afternoon on Sat there were three possibilities...
Miller Fisher
Myasthenia Gravis
Guillaine Barre

The Neuros were leaning toward Guillaine Barre and they started an infusion on Sat evening to help heal his nerves quicker (It's a 5 day infusion). After a few more days, all parties agreed on the diagnosis, GB.
Long story short, he was released on the following Thursday.

Holy hell, I couldn't believe it. I still don't.
He's now walking/running like he didn't have a problem although not as steady - yet.

That was a really scary 3 or 4 days seeing that little boy like that.

I never really thought too much about Myasthenia Gravis until a week or so ago, didn't know much about it, and then you post about Grumpy getting diagnosed. Kinda got a WTH feeling....

Again, hope all goes well.

Generally, PLEX or IVIG infusions are given for GB or MG exacerbations. Some patients may need ventilatory support & good pulmonary toilet to prevent pneumonia & hypercapnia until recovered. Both are relatively rare disorders & need icu monitoring

 

[KurtM]

I'm so sorry to hear this. I hope you are doing ok Patti. Don't forget to take care of yourself too. If there is anything I can do don't hesitate to reach out!

 

[Buck98]